Another interesting week in my journey to halt the MS progression. I was contacted this week to see if I was interested in having the local newspaper write an article about my journey. Of course I am. Yesterday a reporter from the Seguin Gazette stopped by my office.
We had a great conversation with their reporter, Felicia Frazier. She told me that the article will publish shortly before our fundraising BBQ on March 6. We will get together again after I return from Moscow for a follow up story. Her interest in the story is somewhat personal as she has a good friend that has MS. Unfortunately for her friend, she is living in a nursing home. Obviously her MS is more aggressive than mine.
Living in a nursing home or assisted living is part of what I am trying to avoid by having HSCT. Quality of life is what this insidious disease robs people of. Quality of life. Yes, quality of life is what I strive to maintain. Is that asking too much?
This journey is still in the very early stages. But, I can tell you it is already a roller coaster ride. Many ups and downs. I suspect the ups and downs will likely get more intense as time goes on. Better tighten the belt as the ride is going to be very rough. Ugh!
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